The
Auckland Breast Cancer Study Group (ABCSG) was established in 1976 by
various clinicians with a particular interest in breast cancer. The ABCSG recognised
a need for a comprehensive database designed to assist with the ongoing
management, research and audit of breast cancer. As a result, the
Auckland Breast Cancer Register (ABCR) was established on 1 June 2000
after approval was granted by the Northern Ethics Committee.
The Auckland Breast
Cancer Register holds information on diagnosis, treatment and outcomes
of patients within the Auckland region. Confidentiality of data is
maintained at all times and only de-identified data is ever extracted
from the register. This information can then be used by the study group
to feed back into the community for improved future management.
The aims of the Register are to
assist in:
Recording complete information
on diagnosis and treatment.
Describing
risk factors and prognostic variables.
Assessing recurrence-free and
overall survival.
Assessing patterns of care and
aspects of multidisciplinary management.
Reviewing outcomes of defined patient groups compared with
predicted outcomes.
Comparative analysis with the 1976-1985
Auckland Breast Cancer
Database and with similar overseas studies.
Comparing
patient outcomes within and outside trials to assist in directing
further research.
The Auckland Breast Cancer Register
was established in June 2000 and covers the Auckland region.
The project has
received Ethics Committee approval and has been declared a
Quality Assurance Activity under Part VI of the Medical Practitioners
Act 1995.
The Auckland Breast Cancer
Study Group gratefully acknowledges the support
of their primary sponsor: