Breast Cancer Study Group (ABCSG) was established in 1976 by
various clinicians with a particular interest in breast
cancer. The ABCSG recognised the need for a comprehensive
database designed to assist with the ongoing management,
research, and audit of cancer. As a result, the Auckland
Breast Cancer Register (ABCR) was established on 1st
June 2000 after approval was granted by the Northern Ethics
The ABCR holds
information on diagnosis, treatment and outcomes of patients
within the Auckland region.
maintained at all times and only de-identified data is
presented and reported from the Register. This information
can then be used by the Study Group to feed back into the
community for improved future management.
The aims of the Register are to assist in:
Recording complete information on diagnosis and treatment.
Describing risk factors and prognostic variables.
Assessing survival rates.
Assessing patterns of care and aspects of multidisciplinary
Reviewing outcomes of defined patient groups compared with
6.Comparing patient outcomes within and outside trials
to assist in directing further research.
Its objective is to provide data that will assist health
care providers and planners formulate clinical basis for
improvement in the diagnosis and treatment of patients with
breast cancer, and be able to evaluate local patterns of care
and outcomes that can be compared with national and
The project has received
Ethics Committee Approval
and has been declared a Quality Assurance Activity under
Part VI of the Medical Practitioners Act 1995.
New Zealand Breast Cancer Register currently underway!!!
covers the Waitemata, Auckland and Counties Manukau District
Health Boards. Together with the three other regional breast
cancer registers (Waikato:
which covers the Waikato DHB, Wellington: Wairarapa, Capital
& Coast, Hutt Valley DHBs, and Christchurch: Canterbury DHB),
approximately 63% of all New Zealand breast cancer
registrations (around 1600 per annum) are collected.
Zealand Breast Cancer Foundation
is leading and funding a project to consolidate the regional
registers into a single, modern, web-based platform that
will add significant value towards future-proofing these
valuable datasets. The new platform will make it easier for
data to be made available to clinicians for clinical
decision-making and review of outcomes, standards of
treatment, scientific research and audits. The ultimate
vision of collecting these data is to drive improvements in
our treatment and care of breast cancer in New Zealand.
Dendrite Clinical Systems Ltd. (United Kingdom) was selected
to develop the IT platform which will be securely stored at
the Ministry of Health IT platform alongside similar
clinical registries. Patient data will remain confidential
and coded to ensure details are not identifiable. The
partnership has been a collaboration between the New Zealand
Breast Cancer Foundation, Ministry of Health and the
National Health Information Technology Board.